Splenda has never bothered me and a glass of tea here or there seems to be fine, things like coffee and Mountain Dew while they don’t really set off a flare …it sometime just rushes things along. Hot dogs - there is nothing worse for me !! I agree most veggies do kinda rush through, but they don’t make me feel sick or give me cramps so I eat them anyway. One thing my MD told me back when I was really sick was that Crohn’s is an autoimmune disease and more affected by internal factors than external factos - meaning stress is more likely to cause a flare than what I eat. What I eat may result in a bought of cramps and the runs, but it will clear up in a day or two. He also warned me that just b/c something bothers me once, doesn’t mean it will bother me again. One day I can eat ice cream no problem - next day sick as a dog.
Not to offer too much information, but I also found that hormone fluctuations around my period made things unbearable and going on BC was one of the best decisions I ever made !! I heard friends of mine that I met via the CCFA that they felt 100% better and were sympton free during pregnancies and got hit hard afterward so I thought hmmm hormone fluctuations are a bad thing and my GI (whom I adore) said sounds good.
Also, there are some studies that link IBS/Crohn’s to allergies so I also notice that by staying on allergy meds all year and eliminating allergens from my home (better filters in vacuum and heat ducts, installed hard wood in the bedroom, dust mite covers on pillows/mattress, washing curtains every few months) has helped as well. It keeps my body’s histamine response lower and thus reduces the internal stress my body is under.
Again with the TMI, but if you are seeing blood in your stool that is nothing to mess around with and you need to get yourself to a good GI (not PCP). Ignoring that (I was young and embarassed) is what got me in dire straights and hospitalized for a long time and off work for months and on steroids for years).
Sorry this got some long - I really haven’t talk about it in years, since I went off all 20pills/day - so once I got started it all seemed important to share.